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Re: Re: MY treatment
Submitted by Kayte <kaytehollingsworth@gmail.com> on 21/Sep/2009 in reply to Re: MY treatment posted by Shelly on 21/Sep/2009
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My drs are at University of Alabama at Birmingham, I have great drs there. One thing they told me was that because there is so little research there is limited treatment plans, so everything we do is "outside the box". I had a different type of radiation (I understand that regular radiation doesnt wrk for FHC). Its called High Dose Steriotactic radiation. the way it was explained to me was getting a "normal" dose of radiation in a much shorter amount of time (3 treatments in 10 days instead of several over weeks), it was given 3D so that they basicly shot radiation from all directions to the tumor It was also timed with my breathing because the tumor moves with my breating (this is often done in lung cancer). My chemo is called Xeloda and is used for breast and colon cancer. It is supposed to stop angiogenises (blood vessel growth), so it will hopfully stop the tumor from being able to get nutrients it needs to grow. I tried to explain everything as best I could, I know for me one of the scariest things about this is having to learn everything from the ground up (there are no shiny little booklets telling you about your Fibrolamellar Hepatocellular Cancer). I go wed to my drs to see how treatments are going, we probably wont know if anything is wrking for a few months. Thank you so much for replying, you are the first person I have spoken to that is also dealing with FHC. Please let me know what the drs say, I will be thinking about your son on thursday. Thanks again for replying.
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